
My fellow obsessives: I’m not asking that you stop trying to improve. Or that you not try to be better. Or even that you don’t keep a vigilant eye on your faults and defects with an eye to minimizing them.
I wouldn’t dare.
But I’m going to ask you to set aside the flagellum just a second, let the stripes on your back heal a little and consider this: What if it isn’t your fault?
No, I’m serious here. Hear me out.
What if that thing that bedevils you, that you seemingly can’t get over is organic? Something you can’t just use will power to pull yourself out of?
Not saying that you shouldn’t still fight it, but perhaps you need to assume there’s something physical/physiological causing it and you’re going to have to give yourself grace and work around it, instead of keeping hitting your head against the glass like a heat-dazed fly.
See, my assistant — hi Holly — is face blind. During a conversation yesterday, she said it was a great relief to find out she was face blind. As in there was a reason she couldn’t remember anyone’s face, and therefore couldn’t recognize people. And it wasn’t just that she was evil or just didn’t care enough.
Now if you’re me, you’re scratching your head going “How can not remembering faces mean you’re evil and don’t care enough?” But I can almost see how one would get there. Sort of. Through a glass, darkly.
You see, it never occurred to me when I was face blind: from birth till about 40, when I fell and hit my head so hard it rewired a lot of things. I just thought I was an alien, and it was very important that the people around me not find out. No, I’m serious. This was the central assumption of my childhood, because people around me seemed to do/think/be able to accomplish things that to me were utterly opaque. So, I must be an alien, and I’d best be very quiet about it, so they didn’t realize it.
I had tricks to get around it. One of them was to memorize the clothes someone was wearing before we left the house. (I still do it, out of habit.) Which is why I almost went away with a completely different woman from the cemetery on All Saints Day when I was 6. Everyone was wearing a black dress; she was about mom’s height and had the same hairstyle. More importantly, she was wearing the same perfume. Because until I was 41 or so and the thyroid issues kicked in, I had a nose that would rival a scent dog’s. And so I identified people PRIMARILY by smell.
First thing I noticed, after the concussion is that all of a sudden I could remember actors. I still don’t bother to remember their names — why would I? — but faces are sometimes familiar. And at this point all that remains of the face blindness years is a frantic fear when I’m going to meet someone I’ve only seen pictures of or haven’t seen in a few years that I just won’t recognize them. I do, though, so that’s fine. Also people still don’t have faces in my dreams. Just little clouds. BUT I know who they are, so that’s okay.
BUT the point is, as a kid, I knew I was different, but I didn’t think it was something I’d done. I guess because no one ever figured out how utterly face-blind I was, so they couldn’t blame me for it.
They did however blame me for transposing digits. Which I do unless I’m being very careful about it. Which is why, when wood working, I cut a paper template of the wood piece I need, before I go out and cut the piece. (I buy scratch paper by the truck load, yes) because 243 432 and 324 are really the same number. That is, if I’m trying to transcribe one of those and look away for a minute, I’ll transcribe it wrong.
Now, since I liked math, and was always fairly advanced, imagine my bewilderment when I hit the more complex equations. I completely understood the mechanics of the operations. And I enjoyed it. But the result I got defied description. And teachers and adults told me I was stupid, lazy and just not paying attention.
It was the most frustrating thing. Because I tried very hard to beat myself into not doing the stupid. BUT IT STILL HAPPENED.
The problem started with the fact you had to copy the original problem from the blackboard to the paper. Or the book to the paper. It was very rare for the digits to be in the same order once I copied them.
Look, I understand the adults. In a kid who was smart and did understand the operations, to make that kind of error must mean she was just being a spazz because she didn’t care. Or maybe she was sullenly defying you. Meanwhile there was me, endlessly flogging myself over not being able to do this very SIMPLE thing.
I never had that with directions, because mom was there before me. Directions… How do I explain this. You can tell me “Go North” till you’re blue in the face. I don’t “sense” north. I also don’t know what direction I just walked in from. This is endlessly amusing to the nurses at my labyrinthine doctors’ offices, as I try to walk in the completely wrong direction, barge into the blood lab trying to fine the waiting room, or other ill-advised adventures. Now they know me, the question starts as soon as I leave the exam room. “Where are you trying to go, Sarah?” And then someone points. But as I said, I kind of knew that was a disability, because mom had it, and SHE WAS WORSE THAN I WAS. After 50 years of living in the village, mom could still get lost, if she wasn’t very careful. I’m not that bad. Close, but not that bad. But anyway, the family knew it was a brain glitch and it was inherited, so I used work arounds. I wrote myself lists of directions, because words work for me. (Maps don’t.) The only problem I had with this was that husband, who has a precise and unswerving sense of direction, truly couldn’t understand why I “insisted” on going the wrong way for about 10 years. After ten years, he assumed that I wasn’t actually doing it on purpose. (Sometimes he still slips up and yells things like “learn” while I kind of gape at him in confusion. This is usually when he’s handed me a map and asked which way we should go. I don’t know WHY he does it, since it always ends up with him having to pull into a parking lot to look at the map himself, but I guess hope springs eternal.)
Anyway, it was the greatest and weirdest relief when, at a writing workshop 30 years ago, the lady leading it said “Oh, yeah, I’m digit dyslexic” and explained what it was. And I went “Oh. I’m not stupid and lazy. I have a brain glitch.” After which I watched out for and compensated for it, and I was fine. This was also timely, as both the boys inherited the glitch. But since they know what it is, and were forewarned, they just learned the work arounds. And both did fine.
But I do this with all sorts of things. Most recently with having a weird infection (yes, that’s all it is, diagnosed and horse-pill antibiotics brought home, with an appointment in ten days to check and make sure it’s gone. And yes, it’s apparently sequella to the massive ear infection. (Ain’t this year been a barrel of laughs?))
I’ve been beating myself up for not even keeping up with this blog, much less trying to make any progress on the novels, or even attempting to post on my substack. (Whose subscribers probably think I died!) Because it must be laziness, right?
Um…. No. Apparently it was a very, very, very bad infection, whose side effects meant I was ready to fall asleep at six pm and really didn’t even want to do dishes, much less anything more demanding.
Oh, and the weight problem might not be my fault either. I mean, of course I assumed it was. My weight has trended upwards since I got married, and I have to make immense efforts to avoid being gravity-distorting heavy. At one point I lived on 800 calories a day for years. The weight still crept up.
Turns out in addition to the thyroid deciding not to work, which only kicked in at 40, I have apparently been celiac my whole life. (Short form: apparently what I thought was eczema was celiac rash? WHO KNEW? Not me.) and the inflamation has weight-gaining side effects. (Or to be fair, weight loss. But I’ve said I never lose weight when I’m sick, haven’t I? Only gain.) Which explains why the only time I got thin was when I cut ALL carbs. Like, extreme carb reduction. It wasn’t the carbs. it was the bread. And crackers. (I can take or leave the bread, but I love matzo crackers. Better than cookies.)
So you know, when I kept trying harsher and harsher diet and exercise regimes, and hating myself because they didn’t work, it might have been a wee bit insane. Because it was organic. (Yes, it’s creeping off. VERY slowly. Not aided by the fact the thyroid is being stupid, and…. well, the usual, right. If it’s weird, it’s what I have. Have we considered I might actually have been right as a kid? That I am an alien?) Not something I could power through with will power.
So, other than a long whine about my issues — it really isn’t. Other than the digit transposing and the weight, the rest doesn’t bother me. And at this point those only minorly bother me. Except I’d like not to be so heavy because I like pretty clothes. — what is this all about?
Well, fellow obsessives: I KNOW YOU. I am you. We are kin.
So…. That thing you’ve been punishing yourself for, where you’re doing everything right and it refuses to work? That thing you can’t defeat?
Consider the cause is not merely psychological, not something you can power through by beating yourself harder.
Consider it NOT so that you stop trying, but so that you can try more effectively, with workarounds and compensating for what nature didn’t give you or is trying to keep away.
I know it’s very hard for people like us to remember we’re not just minds, but bodies as well.
The truth is that the body — like the enemy (which it often is) — gets a vote. You can’t just override it.
Stop beating yourself, and try more sneakily.
And — this is very hard — learn to live with what you can’t change.
Note, I’m still working very hard on all of this. This is not so much “do as I do” but “Do as I’m trying to do.”
And honestly, I wish you all the luck in the world. It has to be better than beating yourself endlessly.
























































































































































































